May 2012 LifewithFabry Community Newsletter
Dear Friends and Family of LifewithFabry,We are so excited we cannot wait to tell you about how our…See More
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Forum
How You Can Help Spread the Word About LifewithFabry.org
Started by Ben Munoz in General Discussion May 18. 0 Replies 1 Like
Members and friends,We're glad that all of you have managed to find our community, part of the Ben's Friends network of patient communities. Without a doubt, we will one day be as large and active as our largest communities, …Continue
Twitter Chat
Started by John "JC" Colyer in General Discussion. Last reply by John "JC" Colyer May 18. 2 Replies 0 Likes
Hope everybody is well.Would any of you be interesting in being a part of a twitter chat? It could be a fun way to learn about other communities on BF, share your experiences with a rare disease, tell your story and gain exposure for BF and all of…Continue
What would you do to comfort a sick friend?
Started by Armando Abrero in General Discussion. Last reply by Tonia Lee May 15. 2 Replies 0 Likes
"What would you do to comfort a sick friend?"Aside from the usual bouquet of flowers and basket of fruits, I'd like to hear your suggestions, especially from patients, as you would know from your end what cheers up a sick person.I will be compiling…Continue
Hi !!!! I am new to LIFEWITHFABRY
Started by Tracy Z. in General Discussion. Last reply by Ninibeth Mar 29. 3 Replies 1 Like
Hi Everyone!!!! How is everybody feeling today? I am a Moderator from the Chiari Malformation Discussion Group. We currently have 883 of the most Kind & Compassionate Members. I have been learning about Fabry and have volunteered to help get…Continue
Latest Activity
ModeratorBen Munoz posted a blog post
May 2012 LifewithFabry Community Newsletter
Dear Friends and Family of LifewithFabry,We are so excited we cannot wait to tell you about how our…See More
John "JC" Colyer commented on John "JC" Colyer's group Affirmation and Quotes"Don’t base your relationship decisions off of the advice of people who don’t have to…"
ModeratorTracy Z. liked Ben Munoz's discussion How You Can Help Spread the Word About LifewithFabry.org
Armando Abrero posted a blog postOUR ONLINE PRESENCE IS GROWING!!!
OUR ONLINE PRESENCE IS GROWING!!!Check out this link to view Ben's Friends FB-Twitter Milestone.…See More
ModeratorBen Munoz posted a discussion
How You Can Help Spread the Word About LifewithFabry.org
Members and friends,We're glad that all of you have managed to find our community, part of the…See More
John "JC" Colyer replied to John "JC" Colyer's discussion Twitter Chat"We will be posting tutorial video's to help with twitter, we are…"
Top Content
| 1 |
What would you do to comfort a sick friend?Posted by Armando Abrero on May 9, 2012 |
| 2 |
Living with FabryPosted by Tonia Lee on March 16, 2012 |
| 3 |
How You Can Help Spread the Word About LifewithFabry.orgPosted by Ben Munoz on May 18, 2012 |
| 4 |
May 2012 LifewithFabry Community NewsletterAdded by Ben Munoz on May 25, 2012 |
| 5 |
When Sickness Strikes the Family – Caring for the ChildrenAdded by Armando Abrero on May 6, 2012 |
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May 2012 LifewithFabry Community Newsletter
Posted by Ben Munoz on May 25, 2012 at 11:59am 0 Comments 0 Likes
Dear Friends and Family of LifewithFabry,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…
Continue OUR ONLINE PRESENCE IS GROWING!!!
Posted by Armando Abrero on May 22, 2012 at 7:57am 0 Comments 0 Likes
OUR ONLINE PRESENCE IS GROWING!!!
Check out this link to view Ben's Friends FB-Twitter Milestone.…
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