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Acute Disseminated Encephalomyelitis (ADEM)
Arteriovenous Malformation (AVM)
Atrial Septal Defect
Charcot Marie Tooth (CMT)
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Guillain-Barre Syndrome (GBS)
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Traumatic Brain Injury (TBI)
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases
Fabry disease is a fat storage disorder caused by a deficiency of an enzyme, alpha-galactosidase A (also called ceramidetrihexosidase), involved in the breakdown of fats. Since fat doesn't break down properly, part of it (globotriaosylceramide, also called Gb3 or GL-3) accumulates in the blood, blood vessels, and organs of the body and causes damage.
For those of you who aren't able to work any more. What do you like to do to fill your time? If you do crafts, what kind of a craft do you do?I'm hoping all of us can share our ideas to help others (including myself) come up with new things that we…Continue
All moderators and founders of Ben's Friends work very hard to keep spammers off the site, however their methods of applying for membership get more sophisticated each day. Just on this site, we must decline 25-50, maybe more, a day. There are…Continue
Posted by ExpandingFabryAwareness on April 12, 2013
Posted by Ben Munoz on May 20, 2013
Posted by Ben Munoz on May 4, 2013
Added by Ben Munoz on April 27, 2013
Posted by Armando Abrero on May 19, 2013
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Best of Ben's Friends is a collection of inspirational or informative posts from across our family of patient communities. To nominate a post, discussion, photo, or video, email the link to firstname.lastname@example.org.