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Acute Disseminated Encephalomyelitis (ADEM)
Arteriovenous Malformation (AVM)
Atrial Septal Defect
Charcot Marie Tooth (CMT)
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Guillain-Barre Syndrome (GBS)
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Traumatic Brain Injury (TBI)
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases
Fabry disease is a fat storage disorder caused by a deficiency of an enzyme, alpha-galactosidase A (also called ceramidetrihexosidase), involved in the breakdown of fats. Since fat doesn't break down properly, part of it (globotriaosylceramide, also called Gb3 or GL-3) accumulates in the blood, blood vessels, and organs of the body and causes damage.
All moderators and founders of Ben's Friends work very hard to keep spammers off the site, however their methods of applying for membership get more sophisticated each day. Just on this site, we must decline 25-50, maybe more, a day. There are…Continue
Plagued by a burning pain in his hands and feet since childhood, a German artist’s kidneys mysteriously begin to fail. He needed a kidney transplant to save his life. A Brazilian wife’s marriage is tested after her husband develops a mysterious…Continue
The Power of Community for Rare Disease Patients…Continue
Posted by ExpandingFabryAwareness on April 12, 2013
Added by Armando Abrero on April 22, 2013
Added by Ben Munoz on April 27, 2013
Posted by Ben Munoz on May 4, 2013
Added by Ben Munoz on March 26, 2013
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